Skip to the end of the images gallery Skift navigation
Skip to the beginning of the images gallery Skift navigation
One in Thousands
- my life as a rarity
ePUB
1,4 MB
Kopibeskyttelse: Vandmærke
ISBN: 9788743021667
Forlag: Books on Demand
Udgivelsesdato: 26.04.2023
Sprog: Engelsk
Kan fås som:
79,00kr.
inkl. moms
Tilgængelig som download
Vi beder dig være opmærksom på, at du ikke kan læse denne e-bog på Amazon Kindle, men derimod udelukkende på enheder med software, som kan vise epub-filer. Flere informationer
Din egen bog!
Bliv forfatter med BoD og gør din bog og e-bog tilgængelig i boghandlen.
Find ud af mereEhlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look "normal" , nobody understands why you can't BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome.
The author has fought for a "normal" life for 77 years. It didn't become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment - including the medical world - that was convinced her problems "were all in her head".
Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations - there are 13 in all - are far more common. You may have heard of people who suffer from one of them. You may even know one.
The author has fought for a "normal" life for 77 years. It didn't become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment - including the medical world - that was convinced her problems "were all in her head".
Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations - there are 13 in all - are far more common. You may have heard of people who suffer from one of them. You may even know one.
Skriv en anmeldelse
Anmeldelse af læge
Ugeskriftet for lægerjuli 2023
"Bogen handler også om mestringsstrategier, for hun klarer livet alligevel med flere kærester. Den sidste har hun lige haft sølvbryllup med. Hun skaffer sig et nyt job, en adoptivsøn og er stadig i arbejde som journalist. En fantastisk måde at se muligheder i livet på og uden den store selvmedlidenhed."
Merete giver bogen 4 ud af 5 stjerner.
Læs hele anmeldelsen på: https://ugeskriftet.dk/nyhed/jeg-var-tilbojelig-til-tolke-hendes-symptomer-som-pa-graensen-til-hysteriske-hvilket-jeg-nu
december 0002